Post by Dale on Jan 1, 2007 22:08:47 GMT -5
Sarah was diagnosed when she was 9 years old. She had been suffering severe migraines, then had a grand mal seizure. After a brain scan, they discovered an arachnoid cyst in the center of her head, which is inoperable. This cyst affects all the fluid activity in her body. After several years of medication and mri's every 3 months, the doctors told her she was not cancerous and to live her life. 6 months ago she started having the migraines more severe and they discovered the cyst has grown a little and she is has been undergoing more testing and has recently started having vision trouble. Her mom is trying to get her into the Mayo Clinic for treatment.
They have been told everything from "she is fine" to "she only has cancer if the cyst grows" to "she has two years to live" and "nothing can be done unless she has brain damage". Every day of life for Sarah, her mom has to make the best.
At this present time, she is "OK" but still needs more testing and treatment.
Jayne is not asking for help or a handout, only for angels to help make her daughters life the best. Sarah has seen Hinder in concert two or three times, but has yet to meet them. That is her dream. We are trying to make that happen. I'm sure when the guys do finally meet her, she'll have a piece of their hearts too.
We attempted to get Sarah backstage for a short visit this past Saturday but things were too crazy and there was no way to make that happen.
When I first met Sarah she immediately took to us like we had known each other a lifetime. I took here as close to the stage a I could and she was in heaven. She knows every word to every song on Extreme Behavior and she melted me when they played the new song "Thing about you" and she said she loved it and didn't know that Cody could play guitar. I have always been good with kids but have never had one take to me like Sarah. She trusted us 100% and never left our side. One of our friends that was at the show recently came into a little money and went and bought her the Hinder hoodie with the pink H on the front (Thank you Haley)! This little girl has stolen our hearts and we have now made a pact with ourselves to keep up with everything that is going on with her. We are also going to check with them to see if she is covered under insurance or if there is some kind of medical fund set up for her in their community.
If you would like to send words of encouragement to Sarah email them to sarah_spears71@yahoo.com. We figured this is the least we can do for such an esome little Hindermaniac.
Thank you for taking the time to read this. Nothing has ever touched us as much so we wanted to share the story with you.
Hinders music means so much, to so many people, in so many ways and this is definitely proof of that!
The Meds
To learn more about arachnoid cysts visit this site.
www.ninds.nih.gov/disorders/arachnoid_cysts/arachnoid_cysts.htm#What_is_the_prognosis
They have been told everything from "she is fine" to "she only has cancer if the cyst grows" to "she has two years to live" and "nothing can be done unless she has brain damage". Every day of life for Sarah, her mom has to make the best.
At this present time, she is "OK" but still needs more testing and treatment.
Jayne is not asking for help or a handout, only for angels to help make her daughters life the best. Sarah has seen Hinder in concert two or three times, but has yet to meet them. That is her dream. We are trying to make that happen. I'm sure when the guys do finally meet her, she'll have a piece of their hearts too.
We attempted to get Sarah backstage for a short visit this past Saturday but things were too crazy and there was no way to make that happen.
When I first met Sarah she immediately took to us like we had known each other a lifetime. I took here as close to the stage a I could and she was in heaven. She knows every word to every song on Extreme Behavior and she melted me when they played the new song "Thing about you" and she said she loved it and didn't know that Cody could play guitar. I have always been good with kids but have never had one take to me like Sarah. She trusted us 100% and never left our side. One of our friends that was at the show recently came into a little money and went and bought her the Hinder hoodie with the pink H on the front (Thank you Haley)! This little girl has stolen our hearts and we have now made a pact with ourselves to keep up with everything that is going on with her. We are also going to check with them to see if she is covered under insurance or if there is some kind of medical fund set up for her in their community.
If you would like to send words of encouragement to Sarah email them to sarah_spears71@yahoo.com. We figured this is the least we can do for such an esome little Hindermaniac.
Thank you for taking the time to read this. Nothing has ever touched us as much so we wanted to share the story with you.
Hinders music means so much, to so many people, in so many ways and this is definitely proof of that!
The Meds
To learn more about arachnoid cysts visit this site.
www.ninds.nih.gov/disorders/arachnoid_cysts/arachnoid_cysts.htm#What_is_the_prognosis